Donna Cryer joins Jörn Schattenberg, Louise Campbell and Roger Green for an impactful episode which weighs the complexities of competing needs across all Fatty Liver stakeholders. The session expands discourse on the recently discussed ICER draft report to consider the developing nomenclature consensus and other impending decisions. Critically, the group grapples with challenges associated with honoring the precedence of patient-centricity.

This conversation begins with Jörn’s response to a preceding and powerful statement by Donna around the undervalued input of the patient community. Roger and Donna go on to define in different ways what and why it is that they are concerned about in both the context of the ICER draft report and the nomenclature consensus process. Roger relates this contention to the sociology of in-groups and out-groups. Louise adds her thoughts from the allied health perspective. Her main point is that the role of the nurse is to “listen to both sides” between the physician and the patient while ultimately serving the patients’ “well-being, thoughts, feelings and the way they want things to be portrayed.” Not all patients have advocate family members present in hospitals and therefore critical that nurses and other allied health professionals be supported and present to bolster the patient voice. One way to achieve this would be by featuring stronger presence and representation of these groups in panels.

Listen to the full feature to engage with many more insightful moments. If you enjoy the episode, have questions or interest around endocrinology and Fatty Liver disease, we kindly ask that you submit reviews wherever you download the discourse. Alternatively, you can write to us directly at questions@SurfingNASH.com.

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